online support now!

Created in 2010 by the handicap APF France to equip patients with multiple sclerosis, MS Schools, until now face-to-face, are being exported online. Free, they are available online as of January 16, 2023.

3,000 French people learn every year that they have multiple sclerosis (September , chronic inflammatory disease of the central nervous system, the leading cause of non-traumatic disability in young adults (article linked below). In order to best support recently diagnosed people, APF France handicap facilitates, thanks to the presence of helpers and experts, “MS Schools”.

In 5 regions

Created in 2010, they offer patients and their relatives time for discussion in several regions (Grand-Est, Hauts de France, Provence-Alpes-Côte d’Azur, Centre-Val de Loire, Auvergne-Rhône-Alpes) , four to five times a year. At the origin of this program, an observation: Lack of reliable and accessible information on various sources of health and wellness outside of medical channels “. ” But better information can reduce the risk of isolation and improve quality of life “, explains the association. ” I am much more mindful of myself and am now able to articulate why I am in that state. says Elodie, one of the participants.

A free and online tool

As of January 16, 2023, this device is now available online, free of charge, with simple registration. This digital learning path offers reliable information on many topics, from symptoms to social, professional and intimate life, rights, treatments, research, the issue of carers, stress management… Five modules make up this digital training, composed from four hours of interviews with patients and professionals (neurologist, psychologist, etc.), quizzes and documentary sources. ” These online courses can be taken at your own pace “, warns the handicap of APF France. Purpose? “ Understand the pathology better by getting concrete answers “. Patients can also get information on the website “ MS Info », which has a new look with the launch of MS Schools online. Powered by APF France handicap and its associated partners, “ MS Info » lists all news, events and testimonials related to the disease.

Other sources of information

Other sources may provide answers to the 115,000 people affected in France. Launched in January 2022 by the Notre sclérose association, the application ” My life with MS are blowing out the first candle this year (article linked below). Thus, it aims to provide reliable information through dozens of articles, interviews and podcasts. Original, this fun and interactive app is designed like a graphic novel in which users are the heroes. podcast ” Life in Multiple Sclerosis it also appeared in 2022 (article in the link below). Imagined by the pharmaceutical group Novartisthis new format gives voice to patients, who share their reality, that of a ” the life of multiple sclerosis “. This audio project was born from the same observation: the lack of information available for patients who have just faced a diagnosis.

“All rights of reproduction and representation reserved.© Handicap.fr. This article was written by Clotilde Costil, journalist of Handicap.fr”

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